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12 May

Save The Date for the 4th Annual Allie’s Sale!

Kyle Uncategorized 0 0

HUGE NEWS! We are so excited to announce that the 4th Annual Allie’s Sale will be hosted indoors! This year’s sale will be held in the Valley View United Methodist Church Gymnasium (near 95th & Antioch in Overland Park) from October 6th through 8th. Clean your closets, save the date, and help us make this year’s sale the biggest yet!

Allies Sale

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19 Oct

Thank You For Supporting Allie’s Sale!

Kyle Uncategorized 0 0

The 3rd Annual Allie’s Sale raised $33,000 for pediatric brain cancer research in honor of Allie’s birthday.

Thank you to everyone that helped make the 3rd Annual Allie’s Sale such a success! It was a huge undertaking with moving the sale out of the neighborhood this year. We were blessed to have hundreds of families donating, hundreds of wonderful volunteers giving their time, and so many shoppers buying items. Thank you also to Grace Covenant Presbyterian Church and our generous corporate sponsors as well.

Allie’s life, love, and legacy reach far beyond the three years she was here with us. We hold on to each day…knowing that Al continues to make the world a better place.

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13 Sep

Two great 5Ks to support pediatric cancer research

Kyle Uncategorized 0 0

Support pediatric cancer research by participating in these great 5K Run/Walks on Saturday, October 3rd. The Jared Coones Memorial Pumpkin 5K Run/Walk and the Natalie’s A.R.T. Foundation 5K and Family Fun Run are both great events for the family. Make sure to register today!

 

Jared Coones Memorial Pumpkin 5K Run/Walk

The Jared Coones Memorial Pumpkin 5K Run/Walk is held at Black Bob Elementary in Olathe, where Jared went to school. Jared lost his battle to Leukemia when he was ten years old. Eight years later, Jared’s Mom, Jayne, lost her battle to breast cancer. Jared’s Dad, Tom Coones started the Pumpkin Run in memory of Jared and Jayne. Over the last 17 years, Tom has raised hundreds of thousands of dollars for pediatric cancer research, Children’s Mercy, Ronald McDonald’s House and other beneficiares. At last year’s Pumpkin Run, Tom presented Kelly, Kyle, and Evie with the Jayne Coones Hope Award and the Pumpkin Run was a silver level sponsor of Allie’s Sale.

Jared Coones Memorial Pumpkin 5K Run/Walk
October 3, 2015 – 8:00 AM

Black Bob Elementary
14701 Brougham Dr
Olathe, KS 66062

Website and Registration

Natalie’s A.R.T. Foundation 5K and Family Fun Run

The Natalie’s A.R.T. Foundation 5K and Family Fun Run at the South Creek Office Park in Overland Park. Natalie was a vibrant nine year old girl who passed away from DIPG in May of 2013 after a short 8-month battle. DIPG is a sister tumor to Allie’s gliomatosis cerebri, and Natalie and Allie only lived a mile apart from each other. Natalie’s parents, Steve and Ashley, started Natalie’s A.R.T. Foundation and the 5K as a way to honor and remember Natalie. Their mission is to raise awareness, fund research and improve the treatment experience for children battling cancer. Their beneficiaries include St. Jude’s Children’s Research Hospital and The Cure Starts Now. Allie will be one of the children honored at this year’s 5K and Family Fun Run.

Natalie’s A.R.T. Foundation 5K and Family Fun Run
October 3, 2015 – 8:00 AM

South Creek Office Park
7200 W 132nd St
Overland Park KS, 66213

Website and Registration

We hope you have the chance to get out and enjoy the nice fall weather by participating in one of the two wonderful walks that benefit pediatric cancer research.

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13 May

Letting Go of Baggage

Kelly Fisher Grief, Kindness 1 1

I struggle to be a grateful person overall even though I have been the recipient of so much kindness over the past two years. There have been so many incredible ways that family and friends have given me strength and love during such a tragic time. I have also been the recipient of kindness from strangers too. Most notably was the gift of the beautifully crafted Little Owl door that was featured in the documentary, The Gnomist. Such a precious gift and one that I will never figure out how to repay. It continues to provide hope and healing, and I will always treasure it.

But this post is not about that incredible act of kindness either. It’s about the simple act that someone can either make or break your day with. I traveled to Scottsdale in April where I was meeting some girlfriends for the weekend. I was really looking forward to leaving my reality and enjoying some sunshine. I exited the plane and headed down the huge escalator to the ground level at the Phoenix Sky Harbor airport. I had my carry-on bag with me. As I descended on the escalator, my bag was not securely positioned on the step. My bag fell and went flying down the 90 foot escalator like a torpedo. I looked ahead and saw a couple in their sixties towards the bottom of the escalator. Images of injuries and lawsuits flashed in my head. I panicked. I emitted some type of sound that was like an “AghhhughhOhhhhnoooo.” I ran down the moving steps chasing my bag that was way out of reach. My outburst caused them to turn around, and they zeroed in on the bag that was headed their way.
PHX Escalator
That’s where the kindness came in. The man yelled up to me, “I’ll catch it!” and he stuck out his foot to prevent my bag from crashing into them. He caught it and held it for me. I was mortified as I ran down to meet my bag. Embarrassed, I apologized and then they actually thanked me for giving them a heads up. They made me feel like it was no big deal. They didn’t tell me to be more careful, and they didn’t make me feel worse by telling me that they could have been hurt. We said goodbye and went our separate ways. I was still embarrassed as I walked outside towards the taxi stand, but I wasn’t in tears. I surely would have been if I had been yelled at by strangers in the airport. I’m teetering on a cliff these days, and I only need a hint of anger to let out the emotional baggage that I’ve carried since Allie’s death. But instead of my eyes filling with tears, I had a good story to laugh at that night with my friends. A story about the kindness of strangers mixed with my usual antics of pretending (and failing) to be an adult.

Last week, I was at Evie’s school for a muffins with parents event in the morning before I headed to work. I don’t eat breakfast and Evie doesn’t drink coffee, so we parted ways upon entering the cafeteria to our respective lines. I was standing behind a dad in the coffee line that I didn’t know. He poured his coffee from one of those large cardboard boxes from Starbucks. As he went to set it down, he knocked over his coffee cup all over my jeans and onto the floor. Not an ideal way to start the morning. But as that coffee came pouring down my leg, all I could see was my bag shooting down that escalator. He apologized, and I tried to emulate the strangers at the airport. I told him it was no big deal, and I went to get paper towels from the bathroom to help him clean it up.

I went to work that day carrying the scent of coffee (which is a smell I love), and I felt truly grateful for remembering the lesson I learned from the baggage incident at PHX. Those kind strangers taught me a lot in that one moment, and that’s one piece of baggage that I hope I can always hold onto.

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29 Mar

1st International Gliomatosis Cerebri Conference

Kelly Fisher Childhood Cancer 0 0

The first international gliomatosis cerebri conference was held at the Institut Curie in Paris, France on March 26th and 27th. The conference brought together the top physicians and researchers in the world. Experts from Weill Cornell, Dana-Farber, Memorial Sloan-Kettering, Johns Hopkins, and St. Jude’s gathered along with the families devastated by GC. We united to build a foundation for collaboration and to advance the research for GC. Such a successful meeting filled with positivity, progress, and much hope!Conference Objective Conference in Action Families United for a Cure

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2021 KC Head For The Cure 5K!

On August 29th, please join us for an uplifting day, walking with friends and family to honor those who have fought or are fighting brain cancer. We will celebrate Allie’s life and legacy while raising awareness about pediatric brain cancer.

Join Team Little Owl at HFTC 2021

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Team Little Owl is a founding member of the Children’s Brain Tumor Family Foundation.
The CBTFF is a 501(c)(3) non-profit organization dedicated to supporting the ground-breaking research efforts of the Children’s Brain Tumor Project.


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Team Little Owl is a member of the Children’s Brain Tumor Family Foundation. The CBTFF is a 501(c)(3) non-profit organization (EIN: 47-3470154).
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